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HOPErs Thoughts about HOPE
- "HOPE is different from conventional cancer
support systems. We all agree it is far superior and extremely successful.
The general consensus among us is that HOPE means something
different to each of us. We all agree there is no simple way to
identify what is unique or special, but we share the feeling of
quality."
- "There is a separation from both religious and medical connotations.
HOPE is something further. HOPE is felt to often contain
a spiritual experience, which is a sense of being a part of something
that is larger than any of us and yet within us at the same time."
- "There is a "family" atmosphere that can be lost
in large groups. Family atmosphere without the "family fear".
Maybe I should call it the family terror." Everyone in the
group has in one way or another experienced the fright of a diagnosis
of a serious illness. The concept of taking care of someone with
an incapacitating illness of any kind gets very complicated even
with the most loving families."
- "HOPE is the process of taking a step beyond conventional
treatment." The author of this comment conceived of it as balance
in the approach to illness. By this he meant that while HOPE
recognizes the very important biological aspects of illness, the
psychological aspects were important, too
and so were the spiritual.
To this person, "spiritual" didnt necessarily mean
"God", rather it meant "Universal".
- Another participant said she sees hope as a way to live, and HOPE
goes beyond the treatment of the disease to a whole way to live
ones own life. HOPE is, to many, many of its participants,
an ongoing way of life.
- Many others have repeatedly pointed out that HOPE groups function
in an atmosphere of unconditional love. People are accepted as they
are, and they tend to let go of the need to judge each other and
themselves. This makes a HOPE group a very safe place where
there are no "shoulds".
A higher level of supportive input is available with the presence
of this involved and uneducated "support". Many of us
have spent more time trying to take care of the people who love
us than focusing on our own treatment. The input we get in a HOPE
group supports each of us in our own life, and we come to learn
that our ability to give care to our loved ones goes up as we learn
to take care of ourselves. This direct personal input is a very
positive asset of the HOPE concept. Maybe the key to this asset
is finding the meaning in "persons exceptional". A long
legacy is offered to those who open their hearts and minds to improve
their lives, and to recognize their exceptionality, which is the
precious uniqueness of each individuals experience.
"Exceptional" always carries the risk of making someone
"special". This was a major challenge for Alcoholics Anonymous
from the beginning. Alcoholics working the AA program know that
ego inflation is a big challenge for them; it tended to make them
the equivalent of God, and the drink helped out. When sobriety set
in, the Big Ego kept working, leading to the descriptive term, "dry
drunk". Sobriety was said to really be established when the
recovering person was able to realize s-he was not God. Now, 60
years after AA began, the issues of ego inflation are still rampant
in society; so we specify in HOPE that "exceptional"
applies to our wonderful differences that can be viewed as not separating
us from one another, but bringing us together in our collective
and individual service to the Universe.
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